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National Foundation for Celiac Awareness
The National Foundation for Celiac Awareness (NFCA) is a nonprofit organization dedicated to finding a cure for Celiac Disease.

NFCA, a national organization, is affiliated with the leading researchers in the US who are working toward this goal. The Foundation will support collaboration and partnership among scientists and institutions to optimize research potential. We have created an expert panel and competitive grant-making process to fund cutting edge research in the diagnosis and treatment of the disease
CeliacCentral.org
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Nemours Division of Gastroenterology (Digestive Health)

Abdominal pain in childhood is as predictable as loose teeth and skinned knees. But when digestive troubles start interfering with your child’s life, it’s time to speak with your child’s primary care doctor. He or she may refer you to the Nemours Division of Gastroenterology (Digestive Health).

Our board-certified doctors evaluate, diagnose, and treat a wide variety of digestive health conditions, from the routine to the complex. Our expert staff – which also includes several fellows (doctors receiving advanced training in pediatric gastroenterology), specialized nurse practitioners, and a team of highly trained nurses – provides personalized, comprehensive care on an inpatient or outpatient basis for children with such conditions as:

gastroesophageal reflux disease (heartburn)
constipation
abdominal pain
inflammatory bowel disease (IBD), including Crohn’s disease and ulcerative colitis
celiac disease (intolerance to gluten protein)
recurrent vomiting
recurrent diarrhea
disorders affecting nutrient absorption
allergic diseases of the gastrointestinal system
diseases of the liver or pancreas
feeding disorders
gastrointestinal bleeding
motility disorders (slow or rapid movement of the stomach or intestines)
feeding intolerance requiring feeding tube placement (when a tube is inserted to deliver nutrition directly to the stomach via the nose – called a nasogastric, or NG tube – or through an opening in the abdomen – called a gastrostomy, or G tube)
polyps
liver disease requiring transplantation

Additionally, we have specialty programs dedicated to the care of children with specific chronic gastrointestinal conditions. These clinics allow for integrated, cooperative care supported by doctors, nurse practitioners, licensed clinical social workers, and registered dietitians, all working together in a child-centered environment.

Some digestive conditions require surgical intervention, and in these cases we will work closely with Nemours surgeons to ensure the most coordinated care. Our electronic medical record, called NemoursOne, allows all consulting doctors access to the latest information about your child’s medical care, test results, and plans for management.

Your child’s initial visit with us will include a thorough physical exam, medical and family history, and questions about the frequency and severity of your child’s symptoms.

Based on our findings, we may then perform further tests, such as:
blood and urine tests
specialized X-rays, such as an Upper GI study
endoscopy (evaluating the esophagus, stomach, or intestines through a tiny scope). Typically this scope is inserted, under sedation, into your child’s upper digestive tract via the throat or into the intestines via the anus (colonoscopy), depending on what view is necessary.

However the Alfred I. duPont Hospital for Children in Wilmington, Delaware now offers a non-invasive alternative called wireless capsule endoscopy. Essentially a “camera in a pill,” this state-of-the-art procedure provides high-quality images in a less invasive way. This technique allows doctors to see parts of the small intestine that are ordinarily difficult to evaluate using other techniques.

If your child needs traditional endoscopy of the upper digestive tract or a colonscopy, we’re pleased to offer access to an online educational program about the procedure that you can watch on any computer. Created by Emmi® Kids, this easy-to-use animated program will help you better understand the details of the surgical process and what to expect at every step.

pH probe studies (a test to check acid levels in the esophagus)
intestinal manometry (a test to measure pressure and coordination of the intestine)
breath testing (a test to look for lactose intolerance)
intestinal or esophageal biopsy (removing a small sample of tissue for microscopic examination)

The goal of treatment is always to alleviate your child’s symptoms as quickly as possible, and, when necessary, to provide an ongoing management plan to maintain your child’s good digestive health.

Nemours Division of Gastroenterology (Digestive Health)
              
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